Bringing together patients' perspectives on eHealth and mHealth
Throughout their history patient groups have had a proud tradition of supporting each other. Whether reaching across countries or therapy areas, groups have networked, united, and shared ideas and advice. 1: Getting started Setting up a new patient group can feel like a daunting leap …
It’s thought to be around 50 years since the first examples of `Medical Manga’ – graphic novels or comics used for medical education in Japan. Today, it’s reassuring to see that Japanese patient groups continue to make these stories available for download. More widely, across …
From a ‘talking toolkit’ to personalise conversations about Crohn’s disease, to an app simulating app reviews, and a library of recommended apps – the patient group Crohn’s and Colitis UK stands out. Finding what to say The strength of digital is to customise and personalise …
Thalassaemia It’s not often we see a website from a not-for-profit organisation supporting patients that is so ambitious that we wonder how on earth they do it all. The answer would appear to be skill in attracting grants and funding from government programmes and industry …
10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, …