Bringing together patients' perspectives on eHealth and mHealth
One of the learnings from the current pandemic is how rapidly and easily people with all ranges of technical ability and experience have embraced online video meetings. Once expensive and limited to big corporates, during the crisis it’s connected new users to bring families together, …
Our parent, PatientView, has listings of around 40,000 contacts in patient organisations for diverse therapy areas across the world. The database is a monster, requiring constant checking, updating and additions. What it brings home is that now, more than ever, patient groups and health charities …
Thalassaemia It’s not often we see a website from a not-for-profit organisation supporting patients that is so ambitious that we wonder how on earth they do it all. The answer would appear to be skill in attracting grants and funding from government programmes and industry …
Social Inclusion Any parent of a teenager knows how vital it is to have regular access to social media. Equally, social media have connected scattered patient communities and created a powerful network of support and advocacy. But what happens when because of a learning or …
10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, …
Patient organisation chooses practical way to showcase its digital tool – Arthritis Foundation The Arthritis Foundation is a non-profit group organisation in the USA which offers help to patients with arthritis. When they relaunched their successful app and online tool Track and React, they used their …