Bringing together patients' perspectives on eHealth and mHealth
Online masterclasses One positive of the Covid pandemic is the willingness of people with the right technology to engage in lively panel discussions. However, as the months pass, these are often so free range that afterwards learnings are hard to digest. By contrast, when Myeloma …
Balancing needs of the individual with broad advocacy For larger, international umbrella patient groups, maintaining ties with, and supporting individual patients, can be challenging. Nonetheless, one such organisation has made a point of recognising the importance of placing the patient at the heart of what …
BEST DATA PROTECTION PRACTICE For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will …
European cancer patient group argue benefits of mHealth… Lets begin with the European Cancer Patient Coalition (ECPC) which argues the case for mHealth in cancer as part of its White Paper, `The Value of Innovation in Oncology’. In due time the paper will be launched. With …