Bringing together patients' perspectives on eHealth and mHealth
The concept of digital buddies – volunteers who help people to use their laptops and smartphones to stay connected – has become more urgent during the pandemic. Vulnerable, elderly or shielding people have become more reliant on technology than ever before. At the same time, …
Who can help the helplines? Our sister organisation PatientView, is currently seeking the views of patient groups worldwide on the impact of COVID-19 on how they operate, and how they are adapting to the new environment. Helplines are often a core activity of groups, and …
The cold prevalence data shows that most families are affected in some way by the loss associated with miscarriage. Equally, it seems that most cultures find it hard to talk about. It’s also an issue that the health app industry has sometimes failed to address …
If there’s any silver lining in the COVID-19 cloud, it’s a virtual one. Overnight, the demise of physical events has at the same time enabled patient groups to involve more of their members in key meetings. Moreover, virtual participants are on an equal footing, not …
“Nothing works in the present situation – it didn’t before either.” The words from one of the respondents to a recent survey into the impact of Covid-19 by the Swedish patient group, Riksförbundet Attention, representing people with neuropsychiatric disabilities like autism and ADHD. CHALLENGING THE MYTHS Watching …
EXPLAINING TO CHILDREN As adults, COVID-19 is frightening, but for children experiencing lockdown and parental and familial stress, it can be particularly worrying trying to make sense of this new ‘normal’. Having faced the challenge of writing for children with physical and mental health conditions, …
COVID-19 SWEAR BOX VIRTUAL FUNDRAISING Even before the lockdown in our house we’d tried to introduce a swear box to curb obsessive conversations about COVID-19. So, it was great to see a Canadian brain tumour patient group introducing a virtual ‘swear jar’ as part of …
As a charity-shop addict, it’s clear how important traditional, physical fundraising is for regular, sustainable revenue streams. With the growth of social media, we’ve seen the enormous power of big events and campaigns to bring people together to fundraise for health charities. Now, with billions …