Bringing together patients' perspectives on eHealth and mHealth
Online masterclasses One positive of the Covid pandemic is the willingness of people with the right technology to engage in lively panel discussions. However, as the months pass, these are often so free range that afterwards learnings are hard to digest. By contrast, when Myeloma …
Australian clinical trials app Whenever we carry out research with patient groups, involvement in clinical trials is often near the top of each wishlist. At the same time, the industry is embracing technology to recruit and retain for clinical trials. ClinTrial Refer app Since its …
10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, …
Patient groups unite for digital registries Digital patient registry: Patient registries have always provided an important way for patient groups to demonstrate the scale of need, support research participant recruitment, and improve treatment and overall experience. Digital technologies are making real-time evaluation of patients’ real-world experience, …
Bridging the gap between patient groups and developers In brief, feedback from the Arthritis Society in Canada helped a developer to expand the scope of their arthritis app. The app, myHand, originally focused on helping patients to: measure physical changes in their hands identify how …