Bringing together patients' perspectives on eHealth and mHealth
Tourette’s Mothers Exchange Experience of Coping with COVID-19 The awareness month for Tourette’s Syndrome runs from May 15th – June 15th. Like many other patient groups, the Tourette’s Association of America, has created a range of webinars to support their community during the pandemic. “My tics …
Having worked for a couple of decades in support for people with child, adolescent and adult ADHD, it’s pretty clearly that it’s not an ideal condition to have when locked down. Fortunately, those who understand the condition best, the patient groups have stepped in with …
Patient groups are adept at using surveys to raise awareness of their cause. Recently we looked at how ADHD patient groups were helping their communities during the pandemic, including ADHD Ireland. Now this group has gained publicity for the community, by surveying the impact of …
At Myhealthapps.net we believe that patient groups can be a trusted source of expert user reviews of apps and we look for examples of groups curating app libraries well. Here we look at two contrasting patient communities, for their overviews on renal apps and apps …
Patient group uses dyslexia-friendly font on their website Implus en Woortblind is a Dutch patient and advocacy group supporting people with dyslexia, Attention Deficit Disorder (ADD) and Attention Deficit Hyperactivity Disorder (ADHD). We’re well used to seeing buttons to click to make sites more accessible, …