Bringing together patients' perspectives on eHealth and mHealth
mobile health
Although screen readers and automated voice technologies continue to improve, there is no substitute for being `read’ to by a warm, human voice. Reading and recording a leaflet out loud is very time-consuming, but can add a personal touch that the flat tones of automation …
The concept of digital buddies – volunteers who help people to use their laptops and smartphones to stay connected – has become more urgent during the pandemic. Vulnerable, elderly or shielding people have become more reliant on technology than ever before. At the same time, …
Epilepsy group meets Apple’s new rules on app data privacy Data privacy remains one of the most important issues when developing health apps. Consumers need to be able to make informed choices about the data privacy risks involved when downloading and using a health app, …
One of the learnings from the current pandemic is how rapidly and easily people with all ranges of technical ability and experience have embraced online video meetings. Once expensive and limited to big corporates, during the crisis it’s connected new users to bring families together, …
From a virtual library to Pinterest app pages: Alz.org Patient groups can be very versatile at bringing together comprehensive resources in one place for patient and carers. The US-based, not-for-profit, Alzheimer’s Association unites real world and virtual resources to help empower patient, carer and clinical …
Some years ago, we created a toolkit to help people searching for health apps to do that safely. So, it’s always reassuring to see charities supporting patients guide individuals towards trusted resources. Where to start finding information Building on work by the US National Cancer …
From a ‘talking toolkit’ to personalise conversations about Crohn’s disease, to an app simulating app reviews, and a library of recommended apps – the patient group Crohn’s and Colitis UK stands out. Finding what to say The strength of digital is to customise and personalise …
Endometriosis is common, affecting more than 10% of women worldwide – around 180 million people. It’s notoriously difficult and lengthy to diagnose, and incurable, so the clinical focus is on symptom tracking and relief. Apps can play an important role in this, and the non-profit …
Our parent, PatientView, has listings of around 40,000 contacts in patient organisations for diverse therapy areas across the world. The database is a monster, requiring constant checking, updating and additions. What it brings home is that now, more than ever, patient groups and health charities …
Thalassaemia It’s not often we see a website from a not-for-profit organisation supporting patients that is so ambitious that we wonder how on earth they do it all. The answer would appear to be skill in attracting grants and funding from government programmes and industry …