Bringing together patients' perspectives on eHealth and mHealth
Patient groups are uniquely placed from lived experience to guide on how to have the toughest of conversations. The UK patient group charity, the Brainstrust, offers a wide range of support via its website, including sharing their experience on dealing with the challenges of living …
The patient advocacy battle for improved health equity has lasted for generations. Arguably, the diverse impact of Covid both globally between countries, and within specific communities, has intensified focus on the scale of health inequity. Two major patient communities in the US, representing Diabetes and …
Standing out with video at the app stores Even fully commercial developers with big budgets struggle to make their health apps stand out from many thousands on the app stores. The UK patient organisation, the Brain Tumour Charity, stands ahead of the crowd in three …
Complex Science Patients often turn to local patient groups when first diagnosed. Finding out about, and understanding, the often complex science can be very important in the early stages of each patient’s journey. Patient groups are often seen as not only trusted sources, but also …
Patient and caregiver podcast – they’re reaching out In the age of video blogs (Vlogs) and webcasting, it might be tempting to overlook the humble audio podcast. Actually, as patient communities worldwide continue to demonstrate, it has a number of key advantages. For example, in …
Patient groups use simple videos to make apps stand out The whole healthcare industry struggles to find ways to make new health apps stand out. Patient groups have a uniquely trusted and credible relationship with their patient communities. However, they tend to lack the time …
Dystonia Europe – a group with a clear marketing strategy for its app Dystonia Europe was formed in 1993 as the European Dystonia Federation — the European umbrella organisation for national dystonia groups. They have a joined-up approach for marketing their disease diary app, ‘MyDystonia’: …