Bringing together patients' perspectives on eHealth and mHealth

Tag: social media

What’s In A Name?

What’s In A Name?

Our parent, PatientView, has listings of around 40,000 contacts in patient organisations for diverse therapy areas across the world. The database is a monster, requiring constant checking, updating and additions. What it brings home is that now, more than ever, patient groups and health charities […]

Umbrella Group For Thalassaemia Innovates

Umbrella Group For Thalassaemia Innovates

Thalassaemia It’s not often we see a website from a not-for-profit organisation supporting patients that is so ambitious that we wonder how on earth they do it all. The answer would appear to be skill in attracting grants and funding from government programmes and industry […]

Global Genes Celebrating 10 Years

Global Genes Celebrating 10 Years

10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, […]

Arthritis Foundation Showcase Digital Tool

Arthritis Foundation Showcase Digital Tool

Patient organisation chooses practical way to showcase its digital tool – Arthritis Foundation The Arthritis Foundation is a non-profit group organisation in the USA which offers help to patients with arthritis. When they relaunched their successful app and online tool Track and React, they used their […]