Tag: pharma

Eating Disorders Patient Groups Helping Each Other

Eating Disorders Patient Groups Helping Each Other

Throughout their history patient groups have had a proud tradition of supporting each other. Whether reaching across countries or therapy areas, groups have networked, united, and shared ideas and advice.  1: Getting started Setting up a new patient group can feel like a daunting leap 

Medical Manga – Japanese Patient Group

Medical Manga – Japanese Patient Group

It’s thought to be around 50 years since the first examples of `Medical Manga’ – graphic novels or comics used for medical education in Japan. Today, it’s reassuring to see that Japanese patient groups continue to make these stories available for download. More widely, across 

ITP Support Association Launches App

ITP Support Association Launches App

SMALL PATIENT GROUP LAUNCHES ITP APP WITH NOVARTIS  Often, there are lessons to learn from the smallest of patient groups.  The UK’s ITP Support Association worked with Novartis to launch a new app for patients with Immune thrombocytopenia. The association: Consulted the patient community on 

Deloitte – Patients Reasons to Share Data

Deloitte – Patients Reasons to Share Data

PATIENT VIEW RESEARCH IDENTIFIES PATIENTS’ REASONS TO SHARE DATA – Deloitte Research by PatientView with 190 patient groups worldwide for Deloitte found that patients would be “willing” or “somewhat willing” to share their personal health data from apps if it is guaranteed that: Firstly, the 

Pharma apps, lack In trust – PatientView

Pharma apps, lack In trust – PatientView

PATIENT VIEW RESEARCH IDENTIFIES LACK OF TRUST IN PHARMA APPS Research by PatientView with 190 patient groups worldwide for Deloitte found that: Only 32% of patient groups surveyed had ‘some’ or ‘high’ trust in health apps from pharma 76% of patient groups had ‘some’ or