Bringing together patients' perspectives on eHealth and mHealth
RARE VASCULAR DISEASE PATIENT GROUPS DEVELOP APP TOGETHER To begin with Mhealth, apps and eHealth can play a critical role in rare diseases. They can help address some of the gaps in health infrastructure, from finding out about getting a diagnosis, through to information, support …
BEST DATA PROTECTION PRACTICE For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will …