Bringing together patients' perspectives on eHealth and mHealth

Tag: patient organisations

VASCERN – Patient Groups Develop App Together

VASCERN – Patient Groups Develop App Together

RARE VASCULAR DISEASE PATIENT GROUPS DEVELOP APP TOGETHER  To begin with Mhealth, apps and eHealth can play a critical role in rare diseases. They can help address some of the gaps in health infrastructure, from finding out about getting a diagnosis, through to information, support […]

Patient Groups and Data Protection Practice

Patient Groups and Data Protection Practice

BEST DATA PROTECTION PRACTICE  For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will […]