Bringing together patients' perspectives on eHealth and mHealth
RARE VASCULAR DISEASE PATIENT GROUPS DEVELOP APP TOGETHER To begin with Mhealth, apps and eHealth can play a critical role in rare diseases. They can help address some of the gaps in health infrastructure, from finding out about getting a diagnosis, through to information, support …
Australian charity demonstrates key steps in developing a carer tool – Gather My Crew Gather My Crew is a digital tool that enables patients and carers to set up and manage support networks. Although working as a small charity, the team has pulled together good practice …
Patient Groups Contribute to Regulation For Digital Health in Primary Care Have you seen the latest report into digital health primary care/General Practitioner health services by the UK Care Quality Commission? It suggests that although quality of care is improving, there are still significant hurdles …
BEST DATA PROTECTION PRACTICE For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will …
INSIDER’S VIEW OF PHARMA BARRIERS TO APP CREATION In this post we are looking at the insiders view on app creation and barriers. In a recent interview for Eye for Pharma, Sanofi’s Chief Data Officer, Milind Kamkolkar identified some clear reasons why most pharma apps …
PATIENT VIEW RESEARCH IDENTIFIES PATIENTS’ REASONS TO SHARE DATA – Deloitte Research by PatientView with 190 patient groups worldwide for Deloitte found that patients would be “willing” or “somewhat willing” to share their personal health data from apps if it is guaranteed that: Firstly, the …
PATIENT VIEW RESEARCH IDENTIFIES LACK OF TRUST IN PHARMA APPS Research by PatientView with 190 patient groups worldwide for Deloitte found that: Only 32% of patient groups surveyed had ‘some’ or ‘high’ trust in health apps from pharma 76% of patient groups had ‘some’ or …
Mental health patient groups least effective at providing services to patients. Mental health patient groups were the least effective type of patient group at providing services to patients. They dropped from 5th to 10th place (out of 11), according to research carried out by PatientView …
Mental health patient groups must boost their digital capacity, patient alliance survey finds – GAMIAN-Europe A recent survey carried out by GAMIAN-Europe (Global Alliance of Mental Illness Advocacy Networks-Europe) among its member organisations revealed that over half spend less than 10% of their annual budget on …
iPhone ten years on – appiness? Ten years ago, the iPhone launched, moving mHealth into a new gear with trusted apps recommended by patient groups. Looking back: through directories, research, toolkits and websites PatientView and myhealthapps have aimed to connect individual patients with trusted apps recommended …