Tag: pandemic

Helplines Partnership Downloadable Toolkit

Helplines Partnership Downloadable Toolkit

Who can help the helplines? Our sister organisation PatientView, is currently seeking the views of patient groups worldwide on the impact of COVID-19 on how they operate, and how they are adapting to the new environment. Helplines are often a core activity of groups, and…

Miscarriage Group Supports With ‘Virtual Hugs’

Miscarriage Group Supports With ‘Virtual Hugs’

The cold prevalence data shows that most families are affected in some way by the loss associated with miscarriage. Equally, it seems that most cultures find it hard to talk about. It’s also an issue that the health app industry has sometimes failed to address…

Patient Groups Can Involve More Members Virtually

Patient Groups Can Involve More Members Virtually

If there’s any silver lining in the COVID-19 cloud, it’s a virtual one. Overnight, the demise of physical events has at the same time enabled patient groups to involve more of their members in key meetings. Moreover, virtual participants are on an equal footing, not…

Swedish Patient Group Shows COVID-19 Impact

Swedish Patient Group Shows COVID-19 Impact

“Nothing works in the present situation – it didn’t before either.” The words from one of the respondents to a recent survey into the impact of Covid-19 by the Swedish patient group, Riksförbundet Attention, representing people with neuropsychiatric disabilities like autism and ADHD. CHALLENGING THE MYTHS Watching…

ADHD Communities Rise To The COVID Challenge

ADHD Communities Rise To The COVID Challenge

Having worked for a couple of decades in support for people with child, adolescent and adult ADHD, it’s pretty clearly that it’s not an ideal condition to have when locked down. Fortunately, those who understand the condition best, the patient groups have stepped in with…

ADHD Ireland Surveys Pandemic Impact on Families

ADHD Ireland Surveys Pandemic Impact on Families

Patient groups are adept at using surveys to raise awareness of their cause. Recently we looked at how ADHD patient groups were helping their communities during the pandemic, including ADHD Ireland. Now this group has gained publicity for the community, by surveying the impact of…