Tag: #PAGC19

Patient Groups Can Involve More Members Virtually

Patient Groups Can Involve More Members Virtually

If there’s any silver lining in the COVID-19 cloud, it’s a virtual one. Overnight, the demise of physical events has at the same time enabled patient groups to involve more of their members in key meetings. Moreover, virtual participants are on an equal footing, not…

Tourette’s and Coping with COVID-19

Tourette’s and Coping with COVID-19

Tourette’s Mothers Exchange Experience of Coping with COVID-19 The awareness month for Tourette’s Syndrome runs from May 15th – June 15th. Like many other patient groups, the Tourette’s Association of America, has created a range of webinars to support their community during the pandemic.  “My tics…

Swedish Patient Group Shows COVID-19 Impact

Swedish Patient Group Shows COVID-19 Impact

“Nothing works in the present situation – it didn’t before either.” The words from one of the respondents to a recent survey into the impact of Covid-19 by the Swedish patient group, Riksförbundet Attention, representing people with neuropsychiatric disabilities like autism and ADHD. CHALLENGING THE MYTHS Watching…

ADHD Communities Rise To The COVID Challenge

ADHD Communities Rise To The COVID Challenge

Having worked for a couple of decades in support for people with child, adolescent and adult ADHD, it’s pretty clearly that it’s not an ideal condition to have when locked down. Fortunately, those who understand the condition best, the patient groups have stepped in with…

ADHD Ireland Surveys Pandemic Impact on Families

ADHD Ireland Surveys Pandemic Impact on Families

Patient groups are adept at using surveys to raise awareness of their cause. Recently we looked at how ADHD patient groups were helping their communities during the pandemic, including ADHD Ireland. Now this group has gained publicity for the community, by surveying the impact of…

COVID-19 – CHARITIES HELP EXPLAIN  TO CHILDREN

COVID-19 – CHARITIES HELP EXPLAIN TO CHILDREN

EXPLAINING TO CHILDREN As adults, COVID-19 is frightening, but for children experiencing lockdown and parental and familial stress, it can be particularly worrying trying to make sense of this new ‘normal’. Having faced the challenge of writing for children with physical and mental health conditions,…

Brain Tumour Foundation of Canada – COVID19

Brain Tumour Foundation of Canada – COVID19

COVID-19 SWEAR BOX VIRTUAL FUNDRAISING Even before the lockdown in our house we’d tried to introduce a swear box to curb obsessive conversations about COVID-19. So, it was great to see a Canadian brain tumour patient group introducing a virtual ‘swear jar’ as part of…

UK CHARITY POOLS BEST PRACTICE ON FUNDRAISING

UK CHARITY POOLS BEST PRACTICE ON FUNDRAISING

As a charity-shop addict, it’s clear how important traditional, physical fundraising is for regular, sustainable revenue streams. With the growth of social media, we’ve seen the enormous power of big events and campaigns to bring people together to fundraise for health charities. Now, with billions…