Bringing together patients' perspectives on eHealth and mHealth

Tag: networking

Global Genes Celebrating 10 Years

Global Genes Celebrating 10 Years

10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, […]

Gather My Crew – A Developing Tool for Carers

Gather My Crew – A Developing Tool for Carers

Australian charity demonstrates key steps in developing a carer tool – Gather My Crew Gather My Crew is a digital tool that enables patients and carers to set up and manage support networks. Although working as a small charity, the team has pulled together good practice […]