Tag: HTA

ECPC – Balancing the needs of Individuals

ECPC – Balancing the needs of Individuals

Balancing needs of the individual with broad advocacy For larger, international umbrella patient groups, maintaining ties with, and supporting individual patients, can be challenging. Nonetheless, one such organisation has made a point of recognising the importance of placing the patient at the heart of what 

aHUS Alliance – Sharing Through Blogs

aHUS Alliance – Sharing Through Blogs

Sharing Patient Group Experience Through Blogs – aHUS Alliance Working with patient groups for decades, it’s always striking how tough and resilient the individuals at their heart have to be. The challenges and pressures seem to have intensified in that time, and getting noticed in the