Tag: governance

Patient Groups Managing Funding Transparently

Patient Groups Managing Funding Transparently

Patient groups have diverse and strongly held views about whether to seek or receive funding from commercial organisations, particularly pharmaceutical companies. However, there is general acceptance that whenever a group needs does receive funding, it needs to be transparent about it. Beyond the legal need…

Eating Disorders Patient Groups Helping Each Other

Eating Disorders Patient Groups Helping Each Other

Throughout their history patient groups have had a proud tradition of supporting each other. Whether reaching across countries or therapy areas, groups have networked, united, and shared ideas and advice.  1: Getting started Setting up a new patient group can feel like a daunting leap…