Bringing together patients' perspectives on eHealth and mHealth

Tag: global patient groups

Global Genes Celebrating 10 Years

Global Genes Celebrating 10 Years

10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, […]

Global Allergy and Asthma Patient Platform  App – Urticaria

Global Allergy and Asthma Patient Platform App – Urticaria

GLOBAL ALLERGY PATIENT GROUP URTICARIA APP Often it can make sense for international `umbrella’ patient groups to commission, develop or publicise apps on behalf of national patient organisations. The Global Allergy and Asthma Patient Platform Rather than individual local patient groups `reinventing the wheel’ to […]