Bringing together patients' perspectives on eHealth and mHealth
Patient groups have diverse and strongly held views about whether to seek or receive funding from commercial organisations, particularly pharmaceutical companies. However, there is general acceptance that whenever a group needs does receive funding, it needs to be transparent about it. Beyond the legal need …
Throughout their history patient groups have had a proud tradition of supporting each other. Whether reaching across countries or therapy areas, groups have networked, united, and shared ideas and advice. 1: Getting started Setting up a new patient group can feel like a daunting leap …
Patient groups worldwide continue to be badly hit financially as most of their usual fundraising methods stopped during the pandemic. One UK group organised the streaming of a recorded play about their condition to attract donations for views. Getting Better Slowly Guillain-Barre and Associated Inflammatory …
COVID-19 SWEAR BOX VIRTUAL FUNDRAISING Even before the lockdown in our house we’d tried to introduce a swear box to curb obsessive conversations about COVID-19. So, it was great to see a Canadian brain tumour patient group introducing a virtual ‘swear jar’ as part of …
As a charity-shop addict, it’s clear how important traditional, physical fundraising is for regular, sustainable revenue streams. With the growth of social media, we’ve seen the enormous power of big events and campaigns to bring people together to fundraise for health charities. Now, with billions …