Tag: european cancer patient coalition

Myeloma – Virtual better than reality!

Myeloma – Virtual better than reality!

Online masterclasses One positive of the Covid pandemic is the willingness of people with the right technology to engage in lively panel discussions. However, as the months pass, these are often so free range that afterwards learnings are hard to digest. By contrast, when Myeloma 

ECPC – Balancing the needs of Individuals

ECPC – Balancing the needs of Individuals

Balancing needs of the individual with broad advocacy For larger, international umbrella patient groups, maintaining ties with, and supporting individual patients, can be challenging. Nonetheless, one such organisation has made a point of recognising the importance of placing the patient at the heart of what 

Patient Groups and Data Protection Practice

Patient Groups and Data Protection Practice

BEST DATA PROTECTION PRACTICE  For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will