Tag: ECPC

ECPC – Balancing the needs of Individuals

ECPC – Balancing the needs of Individuals

Balancing needs of the individual with broad advocacy For larger, international umbrella patient groups, maintaining ties with, and supporting individual patients, can be challenging. Nonetheless, one such organisation has made a point of recognising the importance of placing the patient at the heart of what…

Patient Groups and Data Protection Practice

Patient Groups and Data Protection Practice

BEST DATA PROTECTION PRACTICE  For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will…

European cancer patient group argues the benefits

European cancer patient group argues the benefits

European cancer patient group argue benefits of mHealth… Lets begin with the European Cancer Patient Coalition (ECPC) which argues the case for mHealth in cancer as part of its White Paper, `The Value of Innovation in Oncology’. In due time the paper will be launched. With…