Bringing together patients' perspectives on eHealth and mHealth

Tag: dystonia

Digital patient registry – Patient Groups Unite

Digital patient registry – Patient Groups Unite

Patient groups unite for digital registries Digital patient registry: Patient registries have always provided an important way for patient groups to demonstrate the scale of need, support research participant recruitment, and improve treatment and overall experience.  Digital technologies are making real-time evaluation of patients’ real-world experience, […]

Dystonia Europe: A Strategy for its App

Dystonia Europe: A Strategy for its App

Dystonia Europe – a group with a clear marketing strategy for its app Dystonia Europe was formed in 1993 as the European Dystonia Federation — the European umbrella organisation for national dystonia groups. They have a joined-up approach for marketing their disease diary app, ‘MyDystonia’: […]