Bringing together patients' perspectives on eHealth and mHealth

Tag: diagnosis

Patient Groups Address The Impact of Liver Disease

Patient Groups Address The Impact of Liver Disease

World Hepatitis Day 28th July is World Hepatitis Day. In the lead-up to this, UK charity, the British Liver Trust, published its key report “The Alarming Rise of Liver Disease in the UK”. On the other side of the world we also look at how […]

Communicating Complex Science

Communicating Complex Science

Complex Science Patients often turn to local patient groups when first diagnosed. Finding out about, and understanding, the often complex science can be very important in the early stages of each patient’s journey. Patient groups are often seen as not only trusted sources, but also […]

NMO Resources App – How Was It Created?

NMO Resources App – How Was It Created?

Patient charities and organisations grow and develop You don’t often find books from patient charities and organisations about how they grow and develop. Victoria Jackson co-founded the Guthy-Jackson Charitable Foundation in 2008 when her daughter was first diagnosed with Neuromyelitis Optica (NMO), a rare, life-threatening […]

Brain Cancer Resources – printed or digital?

Brain Cancer Resources – printed or digital?

When can printed resources be better than digital? In the field of cancer care and cancer care in general, in particular, patients welcome and even seek out support to manage their condition. But how should this support be delivered? In a digital world, resources to […]

Machine Learning: Patient Groups Evaluate

Machine Learning: Patient Groups Evaluate

How can patient groups evaluate machine learning? Let’s begin with machine learning. It touches all aspects of our lives. It is how Amazon, eBay, Google and so on `learn’ how to recommend different products. This is based on websites we visit or what we buy […]