Bringing together patients' perspectives on eHealth and mHealth

Tag: clinical trials

Global Genes Celebrating 10 Years

Global Genes Celebrating 10 Years

10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, […]

Digital patient registry – Patient Groups Unite

Digital patient registry – Patient Groups Unite

Patient groups unite for digital registries Digital patient registry: Patient registries have always provided an important way for patient groups to demonstrate the scale of need, support research participant recruitment, and improve treatment and overall experience.  Digital technologies are making real-time evaluation of patients’ real-world experience, […]

App development: Arthritis Society in Canada

App development: Arthritis Society in Canada

Bridging the gap between patient groups and developers In brief, feedback from the Arthritis Society in Canada helped a developer to expand the scope of their arthritis app. The app, myHand, originally focused on helping patients to: measure physical changes in their hands identify how […]