Bringing together patients' perspectives on eHealth and mHealth

Tag: clinical research

Rare Disease Groups Unite For Apps and Research

Rare Disease Groups Unite For Apps and Research

Rare Disease Day – February 28th  To begin with, rare disease groups have been quick to realise that digital health offers a direct way to reach, support and unite scattered patients who face challenges in accessing diagnosis and treatment. They have also been pragmatic and […]

Patient Groups and Data Protection Practice

Patient Groups and Data Protection Practice

BEST DATA PROTECTION PRACTICE  For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will […]