Bringing together patients' perspectives on eHealth and mHealth

Tag: advocacy

Umbrella Group For Thalassaemia Innovates

Umbrella Group For Thalassaemia Innovates

Thalassaemia It’s not often we see a website from a not-for-profit organisation supporting patients that is so ambitious that we wonder how on earth they do it all. The answer would appear to be skill in attracting grants and funding from government programmes and industry […]

Improving Accessible Health Information

Improving Accessible Health Information

Accessible Health It’s been quite a week for banging my head against the wall with the challenges of a healthcare system which breaks its own rules and law. Take for example, people with visual health needs.  It started with a man with severe sight impairment […]

NMO Resources App – How Was It Created?

NMO Resources App – How Was It Created?

Patient charities and organisations grow and develop You don’t often find books from patient charities and organisations about how they grow and develop. Victoria Jackson co-founded the Guthy-Jackson Charitable Foundation in 2008 when her daughter was first diagnosed with Neuromyelitis Optica (NMO), a rare, life-threatening […]

App Review From Patient Advocacy Sites

App Review From Patient Advocacy Sites

Patient organisations reviewing apps We set up myhealthapps.net in the belief that patient groups know best what their members need most from apps. So, we’ve always been encouraged when patient groups, patient advocacy groups and other not-for-profit patient charities review or recommended apps. Autism apps: […]

aHUS Alliance – Sharing Through Blogs

aHUS Alliance – Sharing Through Blogs

Sharing Patient Group Experience Through Blogs – aHUS Alliance Working with patient groups for decades, it’s always striking how tough and resilient the individuals at their heart have to be. The challenges and pressures seem to have intensified in that time, and getting noticed in the […]

Healthcare Apps Designed With Meaning

Healthcare Apps Designed With Meaning

OVERVIEW OF SUCCESSFUL DIGITAL HEALTH Recently, Experentia, an independent international experience design consultancy, reviewed some of the most used and most highly rated healthcare apps. Their review: embraced many aspects of digital health, from apps for patients and clinicians, through to wearables and ingestible sensors […]