Tag: access

Campaigning against health inequity

Campaigning against health inequity

The patient advocacy battle for improved health equity has lasted for generations. Arguably, the diverse impact of Covid both globally between countries, and within specific communities, has intensified focus on the scale of health inequity.  Two major patient communities in the US, representing Diabetes and…

Bulgarian Group Combats Mental Health Stigma

Bulgarian Group Combats Mental Health Stigma

The Кожа (Skin) not for profit group in Bulgaria works primarily as a campaigning and advocacy group for people with mental illness. For a country of nearly 7 million people, the group calculates that there are only around 500 psychiatrists. One part of their site therefore…

Call to Action And Covid Recovery

Call to Action And Covid Recovery

Patient groups globally are not only helping their communities to deal with the pandemic, but striving to ensure that access to treatments and care continues. There’s a dual challenge of not only advocating to re-engage patients with services disrupted by Covid-19, but also taking opportunities…

Connecting for Clinical Trials

Connecting for Clinical Trials

Australian clinical trials app  Whenever we carry out research with patient groups, involvement in clinical trials is often near the top of each wishlist. At the same time, the industry is embracing technology to recruit and retain for clinical trials. ClinTrial Refer app Since its…

Digital patient registry – Patient Groups Unite

Digital patient registry – Patient Groups Unite

Patient groups unite for digital registries Digital patient registry: Patient registries have always provided an important way for patient groups to demonstrate the scale of need, support research participant recruitment, and improve treatment and overall experience.  Digital technologies are making real-time evaluation of patients’ real-world experience,…