Bringing together patients' perspectives on eHealth and mHealth

Recent Posts

Parkinson’s Diseases – Patient Group Support App

Parkinson’s Diseases – Patient Group Support App

Patient group supports Parkinson’s app Researchers were quick to realise the potential of using Smartphone functionality to gain greater insights into the symptoms of Parkinson’s disease. For example, it’s nearly three years since the launch of the mPower app which gathers data from Parkinson’s patients […]

NMO Resources App – How Was It Created?

NMO Resources App – How Was It Created?

Patient charities and organisations grow and develop You don’t often find books from patient charities and organisations about how they grow and develop. Victoria Jackson co-founded the Guthy-Jackson Charitable Foundation in 2008 when her daughter was first diagnosed with Neuromyelitis Optica (NMO), a rare, life-threatening […]

Global Genes Celebrating 10 Years

Global Genes Celebrating 10 Years

10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, […]

App Review From Patient Advocacy Sites

App Review From Patient Advocacy Sites

Patient organisations reviewing apps We set up myhealthapps.net in the belief that patient groups know best what their members need most from apps. So, we’ve always been encouraged when patient groups, patient advocacy groups and other not-for-profit patient charities review or recommended apps. Autism apps: […]

Dyslexia Friendly Fonts on Websites and Apps

Dyslexia Friendly Fonts on Websites and Apps

Patient group uses dyslexia-friendly font on their website Implus en Woortblind is a Dutch patient and advocacy group supporting people with dyslexia, Attention Deficit Disorder (ADD) and Attention Deficit Hyperactivity Disorder (ADHD). We’re well used to seeing buttons to click to make sites more accessible, […]

Retiring Health Apps, Does it Have to be This Way?

Retiring Health Apps, Does it Have to be This Way?

Retiring apps As an Englishman I’ve always liked the Polish saying which translates as `to leave in the English way’.  Roughly, it means that we sneak out without anyone noticing. The same seems to be true of nearly all health apps at the end of […]

Patient Groups and Site App Recommendations

Patient Groups and Site App Recommendations

Patient groups supporting app reviews and recommendations… The founding principle of myhealthapps.net is that patient groups understand best what patients need from apps. So, we have always advocated that patient groups curate up-to-date reviews and recommendations for apps on their own websites.  In this blog, […]

Podcast – The Audio That Is Reaching Out

Podcast – The Audio That Is Reaching Out

Patient and caregiver podcast – they’re reaching out  In the age of video blogs (Vlogs) and webcasting, it might be tempting to overlook the humble audio podcast. Actually, as patient communities worldwide continue to demonstrate, it has a number of key advantages. For example, in […]

AppleVis and Guide Dogs Accessiblitity

AppleVis and Guide Dogs Accessiblitity

AppleVis – Bridging the accessibility gap I’ll confess now that I’ve written user manuals for everything from the system that may generate your phone bill, to specialist software systems and guides for mobile phones. So, I’m more than full of admiration for any patient group […]

AI Transforming Healthcare

AI Transforming Healthcare

Guest contributor Damien Gruson, Coordinator, City-Labs Project, says trust and education are essential if AI is to transform healthcare.  Artificial intelligence to transform healthcare – are we ready for health 2.0? With a market projected to reach $70 billion by 2020, AI is dominating the […]