Bringing together patients' perspectives on eHealth and mHealth

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iPhone 10 Years On – Patient Groups

iPhone 10 Years On – Patient Groups

iPhone ten years on – appiness? Ten years ago, the iPhone launched, moving mHealth into a new gear with trusted apps recommended by patient groups. Looking back: through directories, research, toolkits and websites PatientView and myhealthapps have aimed to connect individual patients with trusted apps recommended […]

New Zealand Health App Library

New Zealand Health App Library

Patient involvement at the New Zealand health app library The charity running the health app library in New Zealand, supported by the Ministry of Health, builds patient views and needs in a number of ways: Firstly, involving patient groups as advisors to the library, and […]

ePatient Survey Finds Apps in Good Health

ePatient Survey Finds Apps in Good Health

ePatient survey… A recent ePatient survey of around 11,000 patients in Germany, Austria and Switzerland found that: 80% of patients found apps relatively easy to use Almost 20% of patients had used an app for a year or longer 77% of patients would discuss with […]

Dystonia Europe: A Strategy for its App

Dystonia Europe: A Strategy for its App

Dystonia Europe – a group with a clear marketing strategy for its app Dystonia Europe was formed in 1993 as the European Dystonia Federation — the European umbrella organisation for national dystonia groups. They have a joined-up approach for marketing their disease diary app, ‘MyDystonia’: […]

Patients Drop out of eHealth Self-Management

Patients Drop out of eHealth Self-Management

Why do so many patients drop out of eHealth self-management support? A recently-published joint study in Norway, investigated why 12 patients with Type 2 Diabetes quickly left a programme of 4 e-consultations intended to support their self-management with eHealth. Interviews with the patients identified 4 common […]

Unmet needs to an app: CML Advocates Network

Unmet needs to an app: CML Advocates Network

CML Advocates Network: How can patient groups identify and demonstrate the unmet need for a specific app? To develop its treatment compliance app, a global network of patient groups, the CML Advocates Network, carried out large-scale research. They: Surveyed 2,500 patients with CML (Chronic Myeloid […]

Blood Pressure UK connects patients online

Blood Pressure UK connects patients online

Blood Pressure UK connects patients online to free local checks Blood Pressure UK is currently promoting access to Know Your Numbers! Week, the nation’s biggest blood pressure checking event by: recruiting qualified centres to carry out blood pressure checks as part of its annual ‘Know […]

HIV Testing Support via Patient Groups

HIV Testing Support via Patient Groups

Patient groups support text messaging for HIV testing In a project to promote HIV testing in the workplace, researchers concluded the following: Firstly, text messaging is a well received way to motivate people to take HIV tests and follow-up action Secondly, 95 per cent of […]

Machine Learning: Patient Groups Evaluate

Machine Learning: Patient Groups Evaluate

How can patient groups evaluate machine learning? Let’s begin with machine learning. It touches all aspects of our lives. It is how Amazon, eBay, Google and so on `learn’ how to recommend different products. This is based on websites we visit or what we buy […]

Atrial Fibrillation Association confirms patient benefits

Atrial Fibrillation Association confirms patient benefits

AF Association confirms patient benefits of mobile self-monitoring: atrial fibrillation The UK Atrial Fibrillation Association took a recent survey. It uncovers patient needs about self-monitoring their conditions versus clinical visits. The results we as follows: 87% said that they would gain much more freedom when travelling […]