Bringing together patients' perspectives on eHealth and mHealth

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Patient Information – Patient Group Provides Leaflet Service

Patient Information – Patient Group Provides Leaflet Service

You open up your medication. You start to read the leaflet. Your eyes glaze over as you squint through folded pages of small, jargon-filled text. Research shows that those who persevere with reading the leaflet can actually become more anxious and less compliant with treatment. […]

MindApps – Patients And Clinicians Reviewing Apps Together

MindApps – Patients And Clinicians Reviewing Apps Together

At myhealthapps.net, we’ve always argued that patient groups and patients are the best at evaluating the relevance and usefulness of apps. But we’ve also recognised the importance of bringing together all the key stakeholders, including clinicians and developers, and worked to make this happen. MindApps […]

Creating Apps or Games In A Game Jam

Creating Apps or Games In A Game Jam

When at PatientView/myhealthapps we brought clinicians, developers and patients together to identify unmet needs from apps, we knew that getting the right people in the room was key. The same is true of every hackathon and game jam, pooling talents to create a game or […]

Do Patient Groups Always Need App Stores For Their Apps?

Do Patient Groups Always Need App Stores For Their Apps?

Some of the biggest brands like Netflix, Spotify and Epic Games, the makers of Fortnite, appear at various stages of divorce from app stores – setting up ways to download their apps directly. They have a clear motivation, with Apple and Google app stores cited […]

Flying a kite: Around 150 health apps certified

Flying a kite: Around 150 health apps certified

150 health apps certified The Belgian healthcare research and content provider company HealthSkouts maintains a library of links to medical apps certified by the US Food and Drug Administration (FDA) or given a CE mark in the European Union. At the time of writing, there […]

Cancer Research UK – Digital Skills

Cancer Research UK – Digital Skills

Charity Cancer Research UK makes case for digital skills Cancer Research UK, a leading cancer charity, contributed to a major review of the digital skills required in the UK’s National Health Service (NHS). Published in February, the independent Topol Review launched by Health Education England, […]

Autism Apps Get Advice From Charities

Autism Apps Get Advice From Charities

Autism Charities Advice On Apps We created myhealthapps.net because we believe patient groups are best placed to recommend apps from hundreds of thousands available. For example, the community of parent and patient organisations for autism offer advice on relevant apps and digital tools.  Directory of […]

Parkinson’s Diseases – Patient Group Support App

Parkinson’s Diseases – Patient Group Support App

Patient group supports Parkinson’s app Researchers were quick to realise the potential of using Smartphone functionality to gain greater insights into the symptoms of Parkinson’s disease. For example, it’s nearly three years since the launch of the mPower app which gathers data from Parkinson’s patients […]

NMO Resources App – How Was It Created?

NMO Resources App – How Was It Created?

Patient charities and organisations grow and develop You don’t often find books from patient charities and organisations about how they grow and develop. Victoria Jackson co-founded the Guthy-Jackson Charitable Foundation in 2008 when her daughter was first diagnosed with Neuromyelitis Optica (NMO), a rare, life-threatening […]

Global Genes Celebrating 10 Years

Global Genes Celebrating 10 Years

10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, […]