Recent Posts

ECPC – Balancing the needs of Individuals

ECPC – Balancing the needs of Individuals

Balancing needs of the individual with broad advocacy For larger, international umbrella patient groups, maintaining ties with, and supporting individual patients, can be challenging. Nonetheless, one such organisation has made a point of recognising the importance of placing the patient at the heart of what…

British Tinnitus Association – Mapping the Apps for Tinnitus

British Tinnitus Association – Mapping the Apps for Tinnitus

Tinnitus Patient Groups Estimates vary wildly on the prevalence of tinnitus, from 8% for the general population up to 30% for those over 60. As I write this, I’m aware of a persistent whistling in my ears, but I’m one of the lucky ones. Diagnosed…

ADHD Apps – Recommendations for Renal

ADHD Apps – Recommendations for Renal

At Myhealthapps.net we believe that patient groups can be a trusted source of expert user reviews of apps and we look for examples of groups curating app libraries well. Here we look at two contrasting patient communities, for their overviews on renal apps and apps…

Swedish App Retiring Gracefully

Swedish App Retiring Gracefully

Retiring gracefully – Swedish patient group ends app as state steps in. It can be hard for patient groups to know why, when and how to withdraw an app. Ideally, this can happen when the gap it originally addressed is now covered elsewhere. An ongoing…

US Cancer Charity Issues Safe Search Guidance

US Cancer Charity Issues Safe Search Guidance

Some years ago, we created a toolkit to help people searching for health apps to do that safely. So, it’s always reassuring to see charities supporting patients guide individuals towards trusted resources. Where to start finding information Building on work by the US National Cancer…

Danish Patient Group Presents App Suite with Impact

Danish Patient Group Presents App Suite with Impact

When patient groups create apps there’s always a huge challenge about reaching the target audience effectively. When they create more than one app over time, it’s then challenging for a group to present a growing suite of apps in a consistent and coherent way. Astma-Allergi…

Mind The Gap – Electronic Health Records Babel

Mind The Gap – Electronic Health Records Babel

Studies demonstrating the challenges of embedding interoperable Electronic Health Records are as inevitable as Christmas. Clearly, we’ve all been on Santa’s naughty list, because after decades joined-up thinking on our health records feels as far off as ever. In fact, we’ve been so naughty that…

UK Crohn’s Group Digital Innovation Stands Out!

UK Crohn’s Group Digital Innovation Stands Out!

From a ‘talking toolkit’ to personalise conversations about Crohn’s disease, to an app simulating app reviews, and a library of recommended apps – the patient group Crohn’s and Colitis UK stands out. Finding what to say The strength of digital is to customise and personalise…

Endometriosis Apps Library

Endometriosis Apps Library

Endometriosis is common, affecting more than 10% of women worldwide – around 180 million people. It’s notoriously difficult and lengthy to diagnose, and incurable, so the clinical focus is on symptom tracking and relief. Apps can play an important role in this, and the non-profit…

What’s In A Name?

What’s In A Name?

Our parent, PatientView, has listings of around 40,000 contacts in patient organisations for diverse therapy areas across the world. The database is a monster, requiring constant checking, updating and additions. What it brings home is that now, more than ever, patient groups and health charities…