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COVID-19 – CHARITIES HELP EXPLAIN  TO CHILDREN

COVID-19 – CHARITIES HELP EXPLAIN TO CHILDREN

EXPLAINING TO CHILDREN As adults, COVID-19 is frightening, but for children experiencing lockdown and parental and familial stress, it can be particularly worrying trying to make sense of this new ‘normal’. Having faced the challenge of writing for children with physical and mental health conditions,…

Brain Tumour Foundation of Canada – COVID19

Brain Tumour Foundation of Canada – COVID19

COVID-19 SWEAR BOX VIRTUAL FUNDRAISING Even before the lockdown in our house we’d tried to introduce a swear box to curb obsessive conversations about COVID-19. So, it was great to see a Canadian brain tumour patient group introducing a virtual ‘swear jar’ as part of…

UK CHARITY POOLS BEST PRACTICE ON FUNDRAISING

UK CHARITY POOLS BEST PRACTICE ON FUNDRAISING

As a charity-shop addict, it’s clear how important traditional, physical fundraising is for regular, sustainable revenue streams. With the growth of social media, we’ve seen the enormous power of big events and campaigns to bring people together to fundraise for health charities. Now, with billions…

Connecting Our Brain Bank

Connecting Our Brain Bank

One of the learnings from the current pandemic is how rapidly and easily people with all ranges of technical ability and experience have embraced online video meetings. Once expensive and limited to big corporates, during the crisis it’s connected new users to bring families together,…

Alzheimer’s Association – Virtual Library to Pinterest App Pages

Alzheimer’s Association – Virtual Library to Pinterest App Pages

From a virtual library to Pinterest app pages: Alz.org Patient groups can be very versatile at bringing together comprehensive resources in one place for patient and carers. The US-based, not-for-profit, Alzheimer’s Association unites real world and virtual resources to help empower patient, carer and clinical…

ECPC – Balancing the needs of Individuals

ECPC – Balancing the needs of Individuals

Balancing needs of the individual with broad advocacy For larger, international umbrella patient groups, maintaining ties with, and supporting individual patients, can be challenging. Nonetheless, one such organisation has made a point of recognising the importance of placing the patient at the heart of what…

British Tinnitus Association – Mapping the Apps for Tinnitus

British Tinnitus Association – Mapping the Apps for Tinnitus

Tinnitus Patient Groups Estimates vary wildly on the prevalence of tinnitus, from 8% for the general population up to 30% for those over 60. As I write this, I’m aware of a persistent whistling in my ears, but I’m one of the lucky ones. Diagnosed…

ADHD Apps – Recommendations for Renal

ADHD Apps – Recommendations for Renal

At Myhealthapps.net we believe that patient groups can be a trusted source of expert user reviews of apps and we look for examples of groups curating app libraries well. Here we look at two contrasting patient communities, for their overviews on renal apps and apps…

Swedish App Retiring Gracefully

Swedish App Retiring Gracefully

Retiring gracefully – Swedish patient group ends app as state steps in. It can be hard for patient groups to know why, when and how to withdraw an app. Ideally, this can happen when the gap it originally addressed is now covered elsewhere. An ongoing…

US Cancer Charity Issues Safe Search Guidance

US Cancer Charity Issues Safe Search Guidance

Some years ago, we created a toolkit to help people searching for health apps to do that safely. So, it’s always reassuring to see charities supporting patients guide individuals towards trusted resources. Where to start finding information Building on work by the US National Cancer…