Bringing together patients' perspectives on eHealth and mHealth

World Continence Week

The World Federation of Incontinence Patients (WFIP) is a federation of national patient organisations. Its aim is to create global visibility for incontinence and pelvic floor dysfunction and remove any associated stigma and taboos.

The Federation organises World Continence Week, this year running from 17-23 June. It’s a global initiative to raise awareness of bladder weakness, pelvic pain and other debilitating conditions.  

We’ll look at how two of its member organisations draw attention to apps to help.

Australian patient group creates digital support

The Continence Foundation of Australia is celebrating its 30th anniversary. Their vision is of an Australian community “free from the stigma and restrictions of incontinence.” They offer support materials for all types of people with incontinence, including a wide range of conditions, languages and ages. For example, they host a website aimed at young people with incontinence, “Incontinence in Confidence”, backed up by a helpline.

It’s just part of a digital offering ranging from websites to apps. It developed a site on pelvic floor exercises (pelvicfloorfirst.org.au), and then turned this into an app. The Pelvic Floor First app has customised workouts for people of all fitness levels and pelvic floor strength. It aims to enable people to carry out the exercises safely and strengthen their pelvic floor. 

The Foundation has benefitted from its links with the Australian government’s National Continence Program which has helped to fund some of their digital support. They also offer a free app to help women look after their pelvic floor, bladder and bowel during pregnancy.

UK patient charity reviews

At myhealthapps.net, we believe that patient groups are best placed to draw people’s attention to the most relevant and useful apps. Another WFIP member organisation, Bladder Health UK, reviews useful resources on their website, including apps.

It highlights the Squeezy app, which is used in the UK National Health Service (NHS), and has won a number of awards. People can use the app to build pelvic floor exercises into their daily routines, set reminders, and keep a diary to record bladder symptoms. Versions of the app are also available for men and people with Cystic Fibrosis.

NEXT STEPS:

Find out more about World Continence Week at…

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Find out more about the Australian group’s app at myhealthapps.net…

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Find out about the Squeezy app at…

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Find out more about Bladder Health UK at…

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