Bringing together patients' perspectives on eHealth and mHealth

Patient Group News

News from patient groups

Cancer Research UK – Digital Skills

Cancer Research UK – Digital Skills

Charity Cancer Research UK makes case for digital skills Cancer Research UK, a leading cancer charity, contributed to a major review of the digital skills required in the UK’s National Health Service (NHS). Published in February, the independent Topol Review launched by Health Education England, […]

Autism Apps Get Advice From Charities

Autism Apps Get Advice From Charities

Autism Charities Advice On Apps We created myhealthapps.net because we believe patient groups are best placed to recommend apps from hundreds of thousands available. For example, the community of parent and patient organisations for autism offer advice on relevant apps and digital tools.  Directory of […]

Parkinson’s Diseases – Patient Group Support App

Parkinson’s Diseases – Patient Group Support App

Patient group supports Parkinson’s app Researchers were quick to realise the potential of using Smartphone functionality to gain greater insights into the symptoms of Parkinson’s disease. For example, it’s nearly three years since the launch of the mPower app which gathers data from Parkinson’s patients […]

NMO Resources App – How Was It Created?

NMO Resources App – How Was It Created?

Patient charities and organisations grow and develop You don’t often find books from patient charities and organisations about how they grow and develop. Victoria Jackson co-founded the Guthy-Jackson Charitable Foundation in 2008 when her daughter was first diagnosed with Neuromyelitis Optica (NMO), a rare, life-threatening […]

App Review From Patient Advocacy Sites

App Review From Patient Advocacy Sites

Patient organisations reviewing apps We set up myhealthapps.net in the belief that patient groups know best what their members need most from apps. So, we’ve always been encouraged when patient groups, patient advocacy groups and other not-for-profit patient charities review or recommended apps. Autism apps: […]

Dyslexia Friendly Fonts on Websites and Apps

Dyslexia Friendly Fonts on Websites and Apps

Patient group uses dyslexia-friendly font on their website Implus en Woortblind is a Dutch patient and advocacy group supporting people with dyslexia, Attention Deficit Disorder (ADD) and Attention Deficit Hyperactivity Disorder (ADHD). We’re well used to seeing buttons to click to make sites more accessible, […]

Patient Groups and Site App Recommendations

Patient Groups and Site App Recommendations

Patient groups supporting app reviews and recommendations… The founding principle of myhealthapps.net is that patient groups understand best what patients need from apps. So, we have always advocated that patient groups curate up-to-date reviews and recommendations for apps on their own websites.  In this blog, […]

Podcast – The Audio That Is Reaching Out

Podcast – The Audio That Is Reaching Out

Patient and caregiver podcast – they’re reaching out  In the age of video blogs (Vlogs) and webcasting, it might be tempting to overlook the humble audio podcast. Actually, as patient communities worldwide continue to demonstrate, it has a number of key advantages. For example, in […]

DVDs – Patient Organisations Using Video material

DVDs – Patient Organisations Using Video material

Patient Organisations Sending DVDs to Support Patients In the age of video-streaming services like Netflix, and the disappearance of CD/DVD drives from computers, some may consider the DVD a declining format. However, most people still own devices that can play DVDs, and they can still […]

Brain Cancer Resources – printed or digital?

Brain Cancer Resources – printed or digital?

When can printed resources be better than digital? In the field of cancer care and cancer care in general, in particular, patients welcome and even seek out support to manage their condition. But how should this support be delivered? In a digital world, resources to […]