Bringing together patients' perspectives on eHealth and mHealth
News from patient groups
The Кожа (Skin) not for profit group in Bulgaria works primarily as a campaigning and advocacy group for people with mental illness. For a country of nearly 7 million people, the group calculates that there are only around 500 psychiatrists. One part of their site therefore …
The pandemic rapidly accelerated the trend for more clinicians to accept telemedicine. Yet research by our parent organisation PatientView confirmed during the autumn that many patient groups worldwide are extremely concerned about people who lack the technology or digital confidence to access healthcare remotely. Looking …
Patient groups globally are not only helping their communities to deal with the pandemic, but striving to ensure that access to treatments and care continues. There’s a dual challenge of not only advocating to re-engage patients with services disrupted by Covid-19, but also taking opportunities …
As each month passes, we get a widening picture of emerging symptoms of `long COVID’. Gradually, long Covid communities are beginning to appear worldwide, particularly informally on social media. However, the clusters of symptoms can be diverse. So established groups are steppi ng up to …
Most health services struggle to translate medical materials for communities who may not be fluent in the country’s main language. By contrast, Sweden has a long-established tradition of support for patients who are not fluent in Swedish. During the pandemic, this is being underpinned by …
Patient groups worldwide continue to be badly hit financially as most of their usual fundraising methods stopped during the pandemic. One UK group organised the streaming of a recorded play about their condition to attract donations for views. Getting Better Slowly Guillain-Barre and Associated Inflammatory …
For more than 20 years, the UK not for profit, the Patient Information Forum (PIF) and its member patient groups have fought to improve patient health literacy. In its recent survey it confirmed the scale of the challenge in building capacity, capability and confidence in …
Online masterclasses One positive of the Covid pandemic is the willingness of people with the right technology to engage in lively panel discussions. However, as the months pass, these are often so free range that afterwards learnings are hard to digest. By contrast, when Myeloma …
Patient Group Embraces Web App Development As software continues to improve, web apps are one option for groups to create apps quickly and cheaply. For example, in the UK, as part of its app offering, the Motor Neurone Disease Association (MNDA) has created two web …
Australian clinical trials app Whenever we carry out research with patient groups, involvement in clinical trials is often near the top of each wishlist. At the same time, the industry is embracing technology to recruit and retain for clinical trials. ClinTrial Refer app Since its …