Bringing together patients' perspectives on eHealth and mHealth

Patient Group News

News from patient groups

What’s In A Name?

What’s In A Name?

Our parent, PatientView, has listings of around 40,000 contacts in patient organisations for diverse therapy areas across the world. The database is a monster, requiring constant checking, updating and additions. What it brings home is that now, more than ever, patient groups and health charities […]

Sign Language – Signing My Life Away

Sign Language – Signing My Life Away

I’ve always been in awe of all forms of sign language. At a conference for blind people, I experienced a deaf-blind speaker deftly take questions signed on to his hand, and fluidly respond. A Welsh deaf scientist recently invented logical signs for common elements in […]

Calm Harm – Teenage Mental Health Charity Makes It’s Apps Stand Out

Calm Harm – Teenage Mental Health Charity Makes It’s Apps Stand Out

Calm Harm App It’s highly challenging for small health charities and patient groups to get their apps noticed. Stem4, a UK-based mental health charity for teenagers, has gained large numbers of users for its apps. Looking at the websites supporting its anxiety and self-harm apps, […]

Patient Groups As Trusted Information Sources

Patient Groups As Trusted Information Sources

Since the birth of the internet, it’s been more and more important to sift accurate medical information from hype and misinformation. The ongoing challenge is to find an effective way of kite-marking a site to show that it is safe to use. Generally, there is […]

Communicating Complex Science

Communicating Complex Science

Complex Science Patients often turn to local patient groups when first diagnosed. Finding out about, and understanding, the often complex science can be very important in the early stages of each patient’s journey. Patient groups are often seen as not only trusted sources, but also […]

Patient Information – Patient Group Provides Leaflet Service

Patient Information – Patient Group Provides Leaflet Service

You open up your medication. You start to read the leaflet. Your eyes glaze over as you squint through folded pages of small, jargon-filled text. Research shows that those who persevere with reading the leaflet can actually become more anxious and less compliant with treatment. […]

MindApps – Patients And Clinicians Reviewing Apps Together

MindApps – Patients And Clinicians Reviewing Apps Together

At myhealthapps.net, we’ve always argued that patient groups and patients are the best at evaluating the relevance and usefulness of apps. But we’ve also recognised the importance of bringing together all the key stakeholders, including clinicians and developers, and worked to make this happen. MindApps […]

Do Patient Groups Always Need App Stores For Their Apps?

Do Patient Groups Always Need App Stores For Their Apps?

Some of the biggest brands like Netflix, Spotify and Epic Games, the makers of Fortnite, appear at various stages of divorce from app stores – setting up ways to download their apps directly. They have a clear motivation, with Apple and Google app stores cited […]

Cancer Research UK – Digital Skills

Cancer Research UK – Digital Skills

Charity Cancer Research UK makes case for digital skills Cancer Research UK, a leading cancer charity, contributed to a major review of the digital skills required in the UK’s National Health Service (NHS). Published in February, the independent Topol Review launched by Health Education England, […]