Bringing together patients' perspectives on eHealth and mHealth

Patient Group News

Global Allergy and Asthma Patient Platform  App – Urticaria

Global Allergy and Asthma Patient Platform App – Urticaria

GLOBAL ALLERGY PATIENT GROUP URTICARIA APP Often it can make sense for international `umbrella’ patient groups to commission, develop or publicise apps on behalf of national patient organisations. The Global Allergy and Asthma Patient Platform Rather than individual local patient groups `reinventing the wheel’ to […]

Breast Cancer Care Programme – App Development

Breast Cancer Care Programme – App Development

Patient Group Uses 12-Week Accelerator Programme To Develop App A UK patient group, Breast Cancer Care, applied in 2016 to take part in the CAST charity’s 12 week `digital acceleration programme’. Since then, the results have been striking, demonstrating the value of a structured approach […]

Digital patient registry – Patient Groups Unite

Digital patient registry – Patient Groups Unite

Patient groups unite for digital registries Digital patient registry: Patient registries have always provided an important way for patient groups to demonstrate the scale of need, support research participant recruitment, and improve treatment and overall experience.  Digital technologies are making real-time evaluation of patients’ real-world experience, […]

British Liver Trust and Gateway to Digital Tools

British Liver Trust and Gateway to Digital Tools

Patient group uses online screener as gateway to digital tools British Liver Trust: Clinical screening tools to help identity ‘at risk’ populations can be a key part of a patient group’s digital strategy.   They can be resource-intensive to produce, relying on clinical input and […]

DIGITAL HEALTH IN PRIMARY CARE 

DIGITAL HEALTH IN PRIMARY CARE 

Patient Groups Contribute to Regulation For Digital Health in Primary Care Have you seen the latest report into digital health primary care/General Practitioner health services by the UK Care Quality Commission? It suggests that although quality of care is improving, there are still significant hurdles […]

Gestational Diabetes App Approval

Gestational Diabetes App Approval

Gestational diabetes patient group gives evidence to support app approval for Gestational Diabetes app Patient advocacy organisations worldwide have become increasingly sophisticated in how they contribute evidence to improve treatments, pathways and health technologies. Yet, contributing evidence on health and wellness apps has proved challenging in […]

VHL Alliance, Competition Winning App

VHL Alliance, Competition Winning App

VHL Alliance, what helps make patient group app competitions successful? At the end of February, VHL Alliance, the US patient organisation for people with the genetic cancer, launched the winning app resulting from a competition they had organised. The competition: Attracted entries from more than […]

Rare Disease Groups Unite For Apps and Research

Rare Disease Groups Unite For Apps and Research

Rare Disease Day – February 28th  To begin with, rare disease groups have been quick to realise that digital health offers a direct way to reach, support and unite scattered patients who face challenges in accessing diagnosis and treatment. They have also been pragmatic and […]

Healthcare Apps Designed With Meaning

Healthcare Apps Designed With Meaning

OVERVIEW OF SUCCESSFUL DIGITAL HEALTH Recently, Experentia, an independent international experience design consultancy, reviewed some of the most used and most highly rated healthcare apps. Their review: embraced many aspects of digital health, from apps for patients and clinicians, through to wearables and ingestible sensors […]

Asthma Digital Health, Where Next?

Asthma Digital Health, Where Next?

Asthma digital health, what is next? As a huge therapy area, asthma has attracted a large number of poor quality `me too’ apps and poorly implemented digital health activities. But this year there could be a number of breakthroughs in asthma digital health and mHealth, […]