Brain Tumor App – Embedding Video In App Stores

Brain Tumor App – Embedding Video In App Stores

Standing out with video at the app stores Even fully commercial developers with big budgets struggle to make their health apps stand out from many thousands on the app stores. The UK patient organisation, the Brain Tumour Charity, stands ahead of the crowd in three…

Patient Groups Managing Funding Transparently

Patient Groups Managing Funding Transparently

Patient groups have diverse and strongly held views about whether to seek or receive funding from commercial organisations, particularly pharmaceutical companies. However, there is general acceptance that whenever a group needs does receive funding, it needs to be transparent about it. Beyond the legal need…

Eating Disorders Patient Groups Helping Each Other

Eating Disorders Patient Groups Helping Each Other

Throughout their history patient groups have had a proud tradition of supporting each other. Whether reaching across countries or therapy areas, groups have networked, united, and shared ideas and advice.  1: Getting started Setting up a new patient group can feel like a daunting leap…

Digital Tool Identifies Cancer Patient Needs

Digital Tool Identifies Cancer Patient Needs

The UK charity, Macmillan Cancer Support has a long history of innovation in cancer care. In recent years some UK cancer patients have `Holistic Needs Assessments’ at key points in their journey, such as diagnosis or change of treatment. Typically, these are structured, face to…

MPN Group Organises Its Patient Stories

MPN Group Organises Its Patient Stories

Having too much content is a generally a nice problem for a patient group website to have, but it’s still a challenge. The gradual accumulation of compelling content generated by patients can soon fill up any section on a site – blogs, videos, news items,…

The UK’s NHS Latest App Assessment Framework

The UK’s NHS Latest App Assessment Framework

Why should patient groups, anywhere, care about the UK’s latest app assessment framework? Although the UK NHS has historically had some challenges in assessing and reviewing apps, the latest app assessment framework to emerge is worth a look.  Why does evaluation matter to patient groups…

Patient Readers’ Panels – Behind the Patient Groups

Patient Readers’ Panels – Behind the Patient Groups

The people behind patient group content  One of the biggest strengths of patient groups is creating content that their communities find useful and relevant, and making this easy to understand. Creating materials which can engage diverse audiences with different experiences, needs and health literacy can…

Bulgarian Group Combats Mental Health Stigma

Bulgarian Group Combats Mental Health Stigma

The Кожа (Skin) not for profit group in Bulgaria works primarily as a campaigning and advocacy group for people with mental illness. For a country of nearly 7 million people, the group calculates that there are only around 500 psychiatrists. One part of their site therefore…

Charity Tests Approaches To Building Digital Health Literacy

Charity Tests Approaches To Building Digital Health Literacy

The pandemic rapidly accelerated the trend for more clinicians to accept telemedicine. Yet research by our parent organisation PatientView confirmed during the autumn that many patient groups worldwide are extremely concerned about people who lack the technology or digital confidence to access healthcare remotely.  Looking…

Call to Action And Covid Recovery

Call to Action And Covid Recovery

Patient groups globally are not only helping their communities to deal with the pandemic, but striving to ensure that access to treatments and care continues. There’s a dual challenge of not only advocating to re-engage patients with services disrupted by Covid-19, but also taking opportunities…