Versus Arthritis – Presenting The App

Versus Arthritis – Presenting The App

Patient Group’s Masterclass in Presenting an App Patient groups often lack the time and resources to present their apps well. Commercial developers also tend to neglect this key step, and the format limitations of app stores make it hard to differentiate apps.   So, it’s been…

How Well Are Teenagers Using Digital Health Tools?

How Well Are Teenagers Using Digital Health Tools?

Digital Health Generation The recent “Digital Health Generation” report raised concerns about how young people in the UK use apps and other digital technologies to manage their health.  Reaching teenagers On the plus side, the survey with more than 1000 English 11-18 year olds and…

Helplines Partnership Downloadable Toolkit

Helplines Partnership Downloadable Toolkit

Who can help the helplines? Our sister organisation PatientView, is currently seeking the views of patient groups worldwide on the impact of COVID-19 on how they operate, and how they are adapting to the new environment. Helplines are often a core activity of groups, and…

Miscarriage Group Supports With ‘Virtual Hugs’

Miscarriage Group Supports With ‘Virtual Hugs’

The cold prevalence data shows that most families are affected in some way by the loss associated with miscarriage. Equally, it seems that most cultures find it hard to talk about. It’s also an issue that the health app industry has sometimes failed to address…

Patient Groups Can Involve More Members Virtually

Patient Groups Can Involve More Members Virtually

If there’s any silver lining in the COVID-19 cloud, it’s a virtual one. Overnight, the demise of physical events has at the same time enabled patient groups to involve more of their members in key meetings. Moreover, virtual participants are on an equal footing, not…

Tourette’s and Coping with COVID-19

Tourette’s and Coping with COVID-19

Tourette’s Mothers Exchange Experience of Coping with COVID-19 The awareness month for Tourette’s Syndrome runs from May 15th – June 15th. Like many other patient groups, the Tourette’s Association of America, has created a range of webinars to support their community during the pandemic.  “My tics…

ADHD Communities Rise To The COVID Challenge

ADHD Communities Rise To The COVID Challenge

Having worked for a couple of decades in support for people with child, adolescent and adult ADHD, it’s pretty clearly that it’s not an ideal condition to have when locked down. Fortunately, those who understand the condition best, the patient groups have stepped in with…

ADHD Ireland Surveys Pandemic Impact on Families

ADHD Ireland Surveys Pandemic Impact on Families

Patient groups are adept at using surveys to raise awareness of their cause. Recently we looked at how ADHD patient groups were helping their communities during the pandemic, including ADHD Ireland. Now this group has gained publicity for the community, by surveying the impact of…

COVID-19 – CHARITIES HELP EXPLAIN  TO CHILDREN

COVID-19 – CHARITIES HELP EXPLAIN TO CHILDREN

EXPLAINING TO CHILDREN As adults, COVID-19 is frightening, but for children experiencing lockdown and parental and familial stress, it can be particularly worrying trying to make sense of this new ‘normal’. Having faced the challenge of writing for children with physical and mental health conditions,…

Brain Tumour Foundation of Canada – COVID19

Brain Tumour Foundation of Canada – COVID19

COVID-19 SWEAR BOX VIRTUAL FUNDRAISING Even before the lockdown in our house we’d tried to introduce a swear box to curb obsessive conversations about COVID-19. So, it was great to see a Canadian brain tumour patient group introducing a virtual ‘swear jar’ as part of…