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Patient Group News

DVDs – Patient Organisations Using Video material

DVDs – Patient Organisations Using Video material

Patient Organisations Sending DVDs to Support Patients In the age of video-streaming services like Netflix, and the disappearance of CD/DVD drives from computers, some may consider the DVD a declining format. However, most people still own devices that can play DVDs, and they can still […]

Brain Cancer Resources – printed or digital?

Brain Cancer Resources – printed or digital?

When can printed resources be better than digital? In the field of cancer care and cancer care in general, in particular, patients welcome and even seek out support to manage their condition. But how should this support be delivered? In a digital world, resources to […]

Asthma Buddy – Asthma Plan for Mobile Devices

Asthma Buddy – Asthma Plan for Mobile Devices

Patient group redesigns asthma plan for mobile devices  Many patient groups have long-established, tried and tested content, but sometimes in formats not easy to use on today’s smartphones. Finding the budget, time and technically creative skills needed to update and adapt materials for mobile optimisation […]

Global Allergy and Asthma Patient Platform  App – Urticaria

Global Allergy and Asthma Patient Platform App – Urticaria

GLOBAL ALLERGY PATIENT GROUP URTICARIA APP Often it can make sense for international `umbrella’ patient groups to commission, develop or publicise apps on behalf of national patient organisations. The Global Allergy and Asthma Patient Platform Rather than individual local patient groups `reinventing the wheel’ to […]

Breast Cancer Care Programme – App Development

Breast Cancer Care Programme – App Development

Patient Group Uses 12-Week Accelerator Programme To Develop App A UK patient group, Breast Cancer Care, applied in 2016 to take part in the CAST charity’s 12 week `digital acceleration programme’. Since then, the results have been striking, demonstrating the value of a structured approach […]

Digital patient registry – Patient Groups Unite

Digital patient registry – Patient Groups Unite

Patient groups unite for digital registries Digital patient registry: Patient registries have always provided an important way for patient groups to demonstrate the scale of need, support research participant recruitment, and improve treatment and overall experience.  Digital technologies are making real-time evaluation of patients’ real-world experience, […]

British Liver Trust and Gateway to Digital Tools

British Liver Trust and Gateway to Digital Tools

Patient group uses online screener as gateway to digital tools British Liver Trust: Clinical screening tools to help identity ‘at risk’ populations can be a key part of a patient group’s digital strategy.   They can be resource-intensive to produce, relying on clinical input and […]

DIGITAL HEALTH IN PRIMARY CARE 

DIGITAL HEALTH IN PRIMARY CARE 

Patient Groups Contribute to Regulation For Digital Health in Primary Care Have you seen the latest report into digital health primary care/General Practitioner health services by the UK Care Quality Commission? It suggests that although quality of care is improving, there are still significant hurdles […]

Gestational Diabetes App Approval

Gestational Diabetes App Approval

Gestational diabetes patient group gives evidence to support app approval for Gestational Diabetes app Patient advocacy organisations worldwide have become increasingly sophisticated in how they contribute evidence to improve treatments, pathways and health technologies. Yet, contributing evidence on health and wellness apps has proved challenging in […]

VHL Alliance, Competition Winning App

VHL Alliance, Competition Winning App

VHL Alliance, what helps make patient group app competitions successful? At the end of February, VHL Alliance, the US patient organisation for people with the genetic cancer, launched the winning app resulting from a competition they had organised. The competition: Attracted entries from more than […]