Bringing together patients' perspectives on eHealth and mHealth

mhealth

mobile health

Cancer Research UK – Digital Skills

Cancer Research UK – Digital Skills

Charity Cancer Research UK makes case for digital skills Cancer Research UK, a leading cancer charity, contributed to a major review of the digital skills required in the UK’s National Health Service (NHS). Published in February, the independent Topol Review launched by Health Education England, […]

Autism Apps Get Advice From Charities

Autism Apps Get Advice From Charities

Autism Charities Advice On Apps We created myhealthapps.net because we believe patient groups are best placed to recommend apps from hundreds of thousands available. For example, the community of parent and patient organisations for autism offer advice on relevant apps and digital tools.  Directory of […]

Global Genes Celebrating 10 Years

Global Genes Celebrating 10 Years

10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, […]

Podcast – The Audio That Is Reaching Out

Podcast – The Audio That Is Reaching Out

Patient and caregiver podcast – they’re reaching out  In the age of video blogs (Vlogs) and webcasting, it might be tempting to overlook the humble audio podcast. Actually, as patient communities worldwide continue to demonstrate, it has a number of key advantages. For example, in […]

AppleVis and Guide Dogs Accessiblitity

AppleVis and Guide Dogs Accessiblitity

AppleVis – Bridging the accessibility gap I’ll confess now that I’ve written user manuals for everything from the system that may generate your phone bill, to specialist software systems and guides for mobile phones. So, I’m more than full of admiration for any patient group […]

aHUS Alliance – Sharing Through Blogs

aHUS Alliance – Sharing Through Blogs

Sharing Patient Group Experience Through Blogs – aHUS Alliance Working with patient groups for decades, it’s always striking how tough and resilient the individuals at their heart have to be. The challenges and pressures seem to have intensified in that time, and getting noticed in the […]

Wearables – US Digital Health Market

Wearables – US Digital Health Market

US DIGITAL HEALTH ADOPTION SURVEY The digital health market in the US is quite volatile for a combination of regulatory, political and economic factors. However, it can still be useful to reflect on a market characterised by patient choice and advanced wearables, mHealth and eHealth […]

VASCERN – Patient Groups Develop App Together

VASCERN – Patient Groups Develop App Together

RARE VASCULAR DISEASE PATIENT GROUPS DEVELOP APP TOGETHER  To begin with Mhealth, apps and eHealth can play a critical role in rare diseases. They can help address some of the gaps in health infrastructure, from finding out about getting a diagnosis, through to information, support […]

Cybersecurity – SingHealth in Singapore

Cybersecurity – SingHealth in Singapore

ADVOCATING FOR PATIENT CYBERSECURITY? The recent media coverage of the hacking of 1.5 million patient health records at SingHealth in Singapore, including those of the Prime Minister and other ministers, revealed a key gap. Those directly affected – the ordinary patients and their patient groups […]

Patient Groups Struggle with Digital health Skill Gap

Patient Groups Struggle with Digital health Skill Gap

Which digital health skills gaps are biggest for patient groups? A recent Australian report highlighted that one of the biggest barriers to digital health was lack of skills. No surprises there. What is interesting is that the survey of 114 digital health start-ups said that […]