Bringing together patients' perspectives on eHealth and mHealth

mhealth

Challenging Methodologies in Weight Loss App Trials

Challenging Methodologies in Weight Loss App Trials

Methodologies in App Development The same challenge applies to applying typical clinical trial methodologies to app development. The few trials tend to be historical. By the time the trial reports, the app may have been changed many times or been retired. For years we’ve almost […]

Patient Groups As Trusted Information Sources

Patient Groups As Trusted Information Sources

Since the birth of the internet, it’s been more and more important to sift accurate medical information from hype and misinformation. The ongoing challenge is to find an effective way of kite-marking a site to show that it is safe to use. Generally, there is […]

Communicating Complex Science

Communicating Complex Science

Complex Science Patients often turn to local patient groups when first diagnosed. Finding out about, and understanding, the often complex science can be very important in the early stages of each patient’s journey. Patient groups are often seen as not only trusted sources, but also […]

Continued Data Breaches in Healthcare

Continued Data Breaches in Healthcare

Around two years ago, I happened to be waiting in an out-patient department during a ransomware attack on the UK NHS. In this case, the UK’s over-dependence on paper-based patient records paid off. Even so, staff being locked out of all systems, including appointments, caused […]

Patient Information – Patient Group Provides Leaflet Service

Patient Information – Patient Group Provides Leaflet Service

You open up your medication. You start to read the leaflet. Your eyes glaze over as you squint through folded pages of small, jargon-filled text. Research shows that those who persevere with reading the leaflet can actually become more anxious and less compliant with treatment. […]

Cancer Research UK – Digital Skills

Cancer Research UK – Digital Skills

Charity Cancer Research UK makes case for digital skills Cancer Research UK, a leading cancer charity, contributed to a major review of the digital skills required in the UK’s National Health Service (NHS). Published in February, the independent Topol Review launched by Health Education England, […]

Autism Apps Get Advice From Charities

Autism Apps Get Advice From Charities

Autism Charities Advice On Apps We created myhealthapps.net because we believe patient groups are best placed to recommend apps from hundreds of thousands available. For example, the community of parent and patient organisations for autism offer advice on relevant apps and digital tools.  Directory of […]

Global Genes Celebrating 10 Years

Global Genes Celebrating 10 Years

10 years of rare disease support – Global Genes It would be wrong to let 2018 pass without celebrating 10 years of the US-based not-for-profit, rare disease patient advocacy organisation, Global Genes. Global Genes grew out of an organisation founded in 2008 by Nicole Boice, […]

Podcast – The Audio That Is Reaching Out

Podcast – The Audio That Is Reaching Out

Patient and caregiver podcast – they’re reaching out  In the age of video blogs (Vlogs) and webcasting, it might be tempting to overlook the humble audio podcast. Actually, as patient communities worldwide continue to demonstrate, it has a number of key advantages. For example, in […]