Bringing together patients' perspectives on eHealth and mHealth

Healthcare

Digital patient registry – Patient Groups Unite

Digital patient registry – Patient Groups Unite

Patient groups unite for digital registries Digital patient registry: Patient registries have always provided an important way for patient groups to demonstrate the scale of need, support research participant recruitment, and improve treatment and overall experience.  Digital technologies are making real-time evaluation of patients’ real-world experience, […]

Patient Groups and Data Protection Practice

Patient Groups and Data Protection Practice

BEST DATA PROTECTION PRACTICE  For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will […]

Deloitte – Patients Reasons to Share Data

Deloitte – Patients Reasons to Share Data

PATIENT VIEW RESEARCH IDENTIFIES PATIENTS’ REASONS TO SHARE DATA – Deloitte Research by PatientView with 190 patient groups worldwide for Deloitte found that patients would be “willing” or “somewhat willing” to share their personal health data from apps if it is guaranteed that: Firstly, the […]

Pharma apps, lack In trust – PatientView

Pharma apps, lack In trust – PatientView

PATIENT VIEW RESEARCH IDENTIFIES LACK OF TRUST IN PHARMA APPS Research by PatientView with 190 patient groups worldwide for Deloitte found that: Only 32% of patient groups surveyed had ‘some’ or ‘high’ trust in health apps from pharma 76% of patient groups had ‘some’ or […]

Data Protection – Patient Sharing Data Agreement

Data Protection – Patient Sharing Data Agreement

DeepMind, the Royal Free and the ruling Let’s being with The UK Information Commissioner’s Office. They ruled that the patient data sharing agreement between the Royal Free London NHS Foundation Trust and Google DeepMind was non-compliant with data protection law in a number of areas. […]

HIV Testing Support via Patient Groups

HIV Testing Support via Patient Groups

Patient groups support text messaging for HIV testing In a project to promote HIV testing in the workplace, researchers concluded the following: Firstly, text messaging is a well received way to motivate people to take HIV tests and follow-up action Secondly, 95 per cent of […]

Atrial Fibrillation Association confirms patient benefits

Atrial Fibrillation Association confirms patient benefits

AF Association confirms patient benefits of mobile self-monitoring: atrial fibrillation The UK Atrial Fibrillation Association took a recent survey. It uncovers patient needs about self-monitoring their conditions versus clinical visits. The results we as follows: 87% said that they would gain much more freedom when travelling […]

Asthma UK pressing for digital health transformation

Asthma UK pressing for digital health transformation

Asthma UK, mHealth In its recent report, “Smart asthma: Real world implementation of connected devices in the UK to reduce asthma attacks”, Asthma UK continues its long-standing commitment to digital health in asthma. As a result, the report explores “opportunities and possible pitfalls as we […]

Patient advocacy with apps – healthcare

Patient advocacy with apps – healthcare

Driving patient advocacy Patient advocacy with apps: Firstly, through their use of the internet, social media and apps, there is more of a level playing field between small and larger patient groups. Secondly, for years patient organisations of all sizes have created advocacy toolkits to […]

European cancer patient group argues the benefits

European cancer patient group argues the benefits

European cancer patient group argue benefits of mHealth… Lets begin with the European Cancer Patient Coalition (ECPC) which argues the case for mHealth in cancer as part of its White Paper, `The Value of Innovation in Oncology’. In due time the paper will be launched. With […]