Bringing together patients' perspectives on eHealth and mHealth

Apps

New Zealand Health App Library

New Zealand Health App Library

Patient involvement at the New Zealand health app library The charity running the health app library in New Zealand, supported by the Ministry of Health, builds patient views and needs in a number of ways: Firstly, involving patient groups as advisors to the library, and […]

ePatient Survey Finds Apps in Good Health

ePatient Survey Finds Apps in Good Health

ePatient survey… A recent ePatient survey of around 11,000 patients in Germany, Austria and Switzerland found that: 80% of patients found apps relatively easy to use Almost 20% of patients had used an app for a year or longer 77% of patients would discuss with […]

Dystonia Europe: A Strategy for its App

Dystonia Europe: A Strategy for its App

Dystonia Europe – a group with a clear marketing strategy for its app Dystonia Europe was formed in 1993 as the European Dystonia Federation — the European umbrella organisation for national dystonia groups. They have a joined-up approach for marketing their disease diary app, ‘MyDystonia’: […]

Unmet needs to an app: CML Advocates Network

Unmet needs to an app: CML Advocates Network

CML Advocates Network: How can patient groups identify and demonstrate the unmet need for a specific app? To develop its treatment compliance app, a global network of patient groups, the CML Advocates Network, carried out large-scale research. They: Surveyed 2,500 patients with CML (Chronic Myeloid […]

DrugStars app and patient associations

DrugStars app and patient associations

Award-winning DrugStars app enables Danish patients to: Win 1 `star’ each time they take their prescribed medication correctly Convert their `stars’ into a cash donation to a patient association Increase their donation by reviewing their medications. Patient associations: Innovative rewards for compliance Whatever term you […]

Asthma UK pressing for digital health transformation

Asthma UK pressing for digital health transformation

Asthma UK, mHealth In its recent report, “Smart asthma: Real world implementation of connected devices in the UK to reduce asthma attacks”, Asthma UK continues its long-standing commitment to digital health in asthma. As a result, the report explores “opportunities and possible pitfalls as we […]

Patient advocacy with apps – healthcare

Patient advocacy with apps – healthcare

Driving patient advocacy Patient advocacy with apps: Firstly, through their use of the internet, social media and apps, there is more of a level playing field between small and larger patient groups. Secondly, for years patient organisations of all sizes have created advocacy toolkits to […]

Sleep Apnea ResearchKit Study

Sleep Apnea ResearchKit Study

American Sleep Apnea Association research app… To begin with advances in both hardware and software now give patient groups practical ways to start encouraging people to share data for research.  The first wave of patient groups that are using Apple’s Sleep Apnea ResearchKit to gather […]

European cancer patient group argues the benefits

European cancer patient group argues the benefits

European cancer patient group argue benefits of mHealth… Lets begin with the European Cancer Patient Coalition (ECPC) which argues the case for mHealth in cancer as part of its White Paper, `The Value of Innovation in Oncology’. In due time the paper will be launched. With […]

App development: Arthritis Society in Canada

App development: Arthritis Society in Canada

Bridging the gap between patient groups and developers In brief, feedback from the Arthritis Society in Canada helped a developer to expand the scope of their arthritis app. The app, myHand, originally focused on helping patients to: measure physical changes in their hands identify how […]