Bringing together patients' perspectives on eHealth and mHealth

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Patient Groups Address The Impact of Liver Disease

Patient Groups Address The Impact of Liver Disease

World Hepatitis Day 28th July is World Hepatitis Day. In the lead-up to this, UK charity, the British Liver Trust, published its key report “The Alarming Rise of Liver Disease in the UK”. On the other side of the world we also look at how […]

World Continence Week

World Continence Week

The World Federation of Incontinence Patients (WFIP) is a federation of national patient organisations. Its aim is to create global visibility for incontinence and pelvic floor dysfunction and remove any associated stigma and taboos. The Federation organises World Continence Week, this year running from 17-23 […]

Challenging Methodologies in Weight Loss App Trials

Challenging Methodologies in Weight Loss App Trials

Methodologies in App Development The same challenge applies to applying typical clinical trial methodologies to app development. The few trials tend to be historical. By the time the trial reports, the app may have been changed many times or been retired. For years we’ve almost […]

Patient Groups As Trusted Information Sources

Patient Groups As Trusted Information Sources

Since the birth of the internet, it’s been more and more important to sift accurate medical information from hype and misinformation. The ongoing challenge is to find an effective way of kite-marking a site to show that it is safe to use. Generally, there is […]

Communicating Complex Science

Communicating Complex Science

Complex Science Patients often turn to local patient groups when first diagnosed. Finding out about, and understanding, the often complex science can be very important in the early stages of each patient’s journey. Patient groups are often seen as not only trusted sources, but also […]

Continued Data Breaches in Healthcare

Continued Data Breaches in Healthcare

Around two years ago, I happened to be waiting in an out-patient department during a ransomware attack on the UK NHS. In this case, the UK’s over-dependence on paper-based patient records paid off. Even so, staff being locked out of all systems, including appointments, caused […]

Patient Information – Patient Group Provides Leaflet Service

Patient Information – Patient Group Provides Leaflet Service

You open up your medication. You start to read the leaflet. Your eyes glaze over as you squint through folded pages of small, jargon-filled text. Research shows that those who persevere with reading the leaflet can actually become more anxious and less compliant with treatment. […]

MindApps – Patients And Clinicians Reviewing Apps Together

MindApps – Patients And Clinicians Reviewing Apps Together

At myhealthapps.net, we’ve always argued that patient groups and patients are the best at evaluating the relevance and usefulness of apps. But we’ve also recognised the importance of bringing together all the key stakeholders, including clinicians and developers, and worked to make this happen. MindApps […]

Creating Apps or Games In A Game Jam

Creating Apps or Games In A Game Jam

When at PatientView/myhealthapps we brought clinicians, developers and patients together to identify unmet needs from apps, we knew that getting the right people in the room was key. The same is true of every hackathon and game jam, pooling talents to create a game or […]