Bringing together patients' perspectives on eHealth and mHealth

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Patient Groups and Data Protection Practice

Patient Groups and Data Protection Practice

BEST DATA PROTECTION PRACTICE  For many European patient groups and organisations, understanding their obligations under the European Union General Data Protection Regulation can be challenging. Touching all patient group activities from creating apps, to holding individual’s data, to clinical research and registries, the Regulation will […]

ITP Support Association Launches App

ITP Support Association Launches App

SMALL PATIENT GROUP LAUNCHES ITP APP WITH NOVARTIS  Often, there are lessons to learn from the smallest of patient groups.  The UK’s ITP Support Association worked with Novartis to launch a new app for patients with Immune thrombocytopenia. The association: Consulted the patient community on […]

Deloitte – Patients Reasons to Share Data

Deloitte – Patients Reasons to Share Data

PATIENT VIEW RESEARCH IDENTIFIES PATIENTS’ REASONS TO SHARE DATA – Deloitte Research by PatientView with 190 patient groups worldwide for Deloitte found that patients would be “willing” or “somewhat willing” to share their personal health data from apps if it is guaranteed that: Firstly, the […]

Pharma apps, lack In trust – PatientView

Pharma apps, lack In trust – PatientView

PATIENT VIEW RESEARCH IDENTIFIES LACK OF TRUST IN PHARMA APPS Research by PatientView with 190 patient groups worldwide for Deloitte found that: Only 32% of patient groups surveyed had ‘some’ or ‘high’ trust in health apps from pharma 76% of patient groups had ‘some’ or […]

Benchmarking: Mental Health Patient Groups

Benchmarking: Mental Health Patient Groups

Mental health patient groups least effective at providing services to patients. Mental health patient groups were the least effective type of patient group at providing services to patients. They dropped from 5th to 10th place (out of 11), according to research carried out by PatientView […]

GAMIAN-Europe: Mental Health Groups to Boost Digital Capacity

GAMIAN-Europe: Mental Health Groups to Boost Digital Capacity

Mental health patient groups must boost their digital capacity, patient alliance survey finds – GAMIAN-Europe A recent survey carried out by GAMIAN-Europe (Global Alliance of Mental Illness Advocacy Networks-Europe) among its member organisations revealed that over half spend less than 10% of their annual budget on […]

App Launch – Sex Education HIV Education App

App Launch – Sex Education HIV Education App

Innovative app launch event by volunteer sex education group – HIV education Volunteers from the Ponton Group of Sex Educators in Warsaw gained media coverage. This is for the launch of their HIV education app by: Firstly, timing their launch of the app to be […]

Carrot Rewards – Support for Lifestyle App

Carrot Rewards – Support for Lifestyle App

Canadian patient organisations support lifestyle rewards app – Carrot Rewards  Three patient groups and charities supported the Public Health Agency in Canada in developing an app to reward healthy behaviours call Carrot Rewards: Diabetes Canada, the Heart and Stroke Foundation of Canada and the YMCA […]

Data Protection – Patient Sharing Data Agreement

Data Protection – Patient Sharing Data Agreement

DeepMind, the Royal Free and the ruling One month ago, the UK Information Commissioner’s Office ruled that the patient data sharing agreement between the Royal Free London NHS Foundation Trust and Google DeepMind was non-compliant with data protection law in a number of areas. What […]