Recent Posts

Motor Neurone Disease Association Web Apps

Motor Neurone Disease Association Web Apps

Patient Group Embraces Web App Development As software continues to improve, web apps are one option for groups to create apps quickly and cheaply. For example, in the UK, as part of its app offering, the Motor Neurone Disease Association (MNDA) has created two web…

Connecting for Clinical Trials

Connecting for Clinical Trials

Australian clinical trials app  Whenever we carry out research with patient groups, involvement in clinical trials is often near the top of each wishlist. At the same time, the industry is embracing technology to recruit and retain for clinical trials. ClinTrial Refer app Since its…

Versus Arthritis – Presenting The App

Versus Arthritis – Presenting The App

Patient Group’s Masterclass in Presenting an App Patient groups often lack the time and resources to present their apps well. Commercial developers also tend to neglect this key step, and the format limitations of app stores make it hard to differentiate apps.   So, it’s been…

How Well Are Teenagers Using Digital Health Tools?

How Well Are Teenagers Using Digital Health Tools?

Digital Health Generation The recent “Digital Health Generation” report raised concerns about how young people in the UK use apps and other digital technologies to manage their health.  Reaching teenagers On the plus side, the survey with more than 1000 English 11-18 year olds and…

Helplines Partnership Downloadable Toolkit

Helplines Partnership Downloadable Toolkit

Who can help the helplines? Our sister organisation PatientView, is currently seeking the views of patient groups worldwide on the impact of COVID-19 on how they operate, and how they are adapting to the new environment. Helplines are often a core activity of groups, and…

Miscarriage Group Supports With ‘Virtual Hugs’

Miscarriage Group Supports With ‘Virtual Hugs’

The cold prevalence data shows that most families are affected in some way by the loss associated with miscarriage. Equally, it seems that most cultures find it hard to talk about. It’s also an issue that the health app industry has sometimes failed to address…

Patient Groups Can Involve More Members Virtually

Patient Groups Can Involve More Members Virtually

If there’s any silver lining in the COVID-19 cloud, it’s a virtual one. Overnight, the demise of physical events has at the same time enabled patient groups to involve more of their members in key meetings. Moreover, virtual participants are on an equal footing, not…

Tourette’s and Coping with COVID-19

Tourette’s and Coping with COVID-19

Tourette’s Mothers Exchange Experience of Coping with COVID-19 The awareness month for Tourette’s Syndrome runs from May 15th – June 15th. Like many other patient groups, the Tourette’s Association of America, has created a range of webinars to support their community during the pandemic.  “My tics…

Swedish Patient Group Shows COVID-19 Impact

Swedish Patient Group Shows COVID-19 Impact

“Nothing works in the present situation – it didn’t before either.” The words from one of the respondents to a recent survey into the impact of Covid-19 by the Swedish patient group, Riksförbundet Attention, representing people with neuropsychiatric disabilities like autism and ADHD. CHALLENGING THE MYTHS Watching…

ADHD Communities Rise To The COVID Challenge

ADHD Communities Rise To The COVID Challenge

Having worked for a couple of decades in support for people with child, adolescent and adult ADHD, it’s pretty clearly that it’s not an ideal condition to have when locked down. Fortunately, those who understand the condition best, the patient groups have stepped in with…