Recent Posts

The UK’s NHS Latest App Assessment Framework

The UK’s NHS Latest App Assessment Framework

Why should patient groups, anywhere, care about the UK’s latest app assessment framework? Although the UK NHS has historically had some challenges in assessing and reviewing apps, the latest app assessment framework to emerge is worth a look.  Why does evaluation matter to patient groups…

Medical Manga – Japanese Patient Group

Medical Manga – Japanese Patient Group

It’s thought to be around 50 years since the first examples of `Medical Manga’ – graphic novels or comics used for medical education in Japan. Today, it’s reassuring to see that Japanese patient groups continue to make these stories available for download. More widely, across…

Digital Buddies in Covid

Digital Buddies in Covid

The concept of digital buddies – volunteers who help people to use their laptops and smartphones to stay connected – has become more urgent during the pandemic. Vulnerable, elderly or shielding people have become more reliant on technology than ever before.  At the same time,…

Patient Readers’ Panels – Behind the Patient Groups

Patient Readers’ Panels – Behind the Patient Groups

The people behind patient group content  One of the biggest strengths of patient groups is creating content that their communities find useful and relevant, and making this easy to understand. Creating materials which can engage diverse audiences with different experiences, needs and health literacy can…

Apple Store Data Privacy Profiles

Apple Store Data Privacy Profiles

Epilepsy group meets Apple’s new rules on app data privacy  Data privacy remains one of the most important issues when developing health apps. Consumers need to be able to make informed choices about the data privacy risks involved when downloading and using a health app,…

Bulgarian Group Combats Mental Health Stigma

Bulgarian Group Combats Mental Health Stigma

The Кожа (Skin) not for profit group in Bulgaria works primarily as a campaigning and advocacy group for people with mental illness. For a country of nearly 7 million people, the group calculates that there are only around 500 psychiatrists. One part of their site therefore…

Charity Tests Approaches To Building Digital Health Literacy

Charity Tests Approaches To Building Digital Health Literacy

The pandemic rapidly accelerated the trend for more clinicians to accept telemedicine. Yet research by our parent organisation PatientView confirmed during the autumn that many patient groups worldwide are extremely concerned about people who lack the technology or digital confidence to access healthcare remotely.  Looking…

Call to Action And Covid Recovery

Call to Action And Covid Recovery

Patient groups globally are not only helping their communities to deal with the pandemic, but striving to ensure that access to treatments and care continues. There’s a dual challenge of not only advocating to re-engage patients with services disrupted by Covid-19, but also taking opportunities…

Patient Groups Prepare For Patients With Long Covid

Patient Groups Prepare For Patients With Long Covid

As each month passes, we get a widening picture of emerging symptoms of `long COVID’. Gradually, long Covid communities are beginning to appear worldwide, particularly informally on social media. However, the clusters of symptoms can be diverse. So established groups are steppi ng up to…

Swedish Volunteers Bridge Language Gap During COVID

Swedish Volunteers Bridge Language Gap During COVID

Most health services struggle to translate medical materials for communities who may not be fluent in the country’s main language. By contrast, Sweden has a long-established tradition of support for patients who are not fluent in Swedish. During the pandemic, this is being underpinned by…