Bringing together patients' perspectives on eHealth and mHealth
Patient groups are uniquely placed from lived experience to guide on how to have the toughest of conversations. The UK patient group charity, the Brainstrust, offers a wide range of support via its website, including sharing their experience on dealing with the challenges of living …
In 2016, the charity Alzheimer’s Research UK, helped to launch the innovative app game, Sea Hero Quest. 5 years on, its re-launch is aimed at the research community to build on the learnings from the original project. Research at scale Outside of Covid-related apps like the …
Although screen readers and automated voice technologies continue to improve, there is no substitute for being `read’ to by a warm, human voice. Reading and recording a leaflet out loud is very time-consuming, but can add a personal touch that the flat tones of automation …
Patient groups are uniquely placed from lived experience to guide on how to have the toughest of conversations. The UK patient group charity, the Brainstrust, offers a wide range of support via its website, including sharing their experience on dealing with the challenges of living …
In 2016, the charity Alzheimer’s Research UK, helped to launch the innovative app game, Sea Hero Quest. 5 years on, its re-launch is aimed at the research community to build on the learnings from the original project. Research at scale Outside of Covid-related apps like the …
Although screen readers and automated voice technologies continue to improve, there is no substitute for being `read’ to by a warm, human voice. Reading and recording a leaflet out loud is very time-consuming, but can add a personal touch that the flat tones of automation …
The patient advocacy battle for improved health equity has lasted for generations. Arguably, the diverse impact of Covid both globally between countries, and within specific communities, has intensified focus on the scale of health inequity. Two major patient communities in the US, representing Diabetes and …
Standing out with video at the app stores Even fully commercial developers with big budgets struggle to make their health apps stand out from many thousands on the app stores. The UK patient organisation, the Brain Tumour Charity, stands ahead of the crowd in three …
Patient groups have diverse and strongly held views about whether to seek or receive funding from commercial organisations, particularly pharmaceutical companies. However, there is general acceptance that whenever a group needs does receive funding, it needs to be transparent about it. Beyond the legal need …
Throughout their history patient groups have had a proud tradition of supporting each other. Whether reaching across countries or therapy areas, groups have networked, united, and shared ideas and advice. 1: Getting started Setting up a new patient group can feel like a daunting leap …
The UK charity, Macmillan Cancer Support has a long history of innovation in cancer care. In recent years some UK cancer patients have `Holistic Needs Assessments’ at key points in their journey, such as diagnosis or change of treatment. Typically, these are structured, face to …
Having too much content is a generally a nice problem for a patient group website to have, but it’s still a challenge. The gradual accumulation of compelling content generated by patients can soon fill up any section on a site – blogs, videos, news items, …
Why should patient groups, anywhere, care about the UK’s latest app assessment framework? Although the UK NHS has historically had some challenges in assessing and reviewing apps, the latest app assessment framework to emerge is worth a look. Why does evaluation matter to patient groups …